Search Articles

Home / Articles

Urdu translation and validation of Cerebral Palsy Quality of Life Teen self-report version (13 to 18 years) Version

. Dr. Hafsa Naseem , Dr.Amna Shahid & Dr.Muhammad Asif Javed


Abstract

Background: Cerebral palsy (CP) is the most common neurodevelopmental disorder in pediatric population that affects muscle tone, movement, posture and motor skills. The CP QOL-teen self-report is an instrument which is designed specifically for adolescence with CP to assess well-being rather than ill-being.

Objective of the study: To translate Cerebral Palsy Quality of Life (CP QOL) teen self-report version (13 to 18 years) in Urdu and to check its validation o.

Participants and Methods: Two hundred adolescent with CP (aged 13 to 18years) were registered. The Cerebral palsy quality of life for adolescent (CPQOL-teen self-report) questionnaire was translated to Urdu language, and a validation study was performed. The relationships between the CPQOL-teen self-report domains and children’s Gross Motor Function Classification System’s levels were analyzed.

Results: The results showed that age and gender of the adolescents with CP are not significant factors that affect the quality-of-life domains. Cronbach’s α was 0.863 which indicates high significant values of internal consistency  detected among items within each quality-of-life domain.The intra-class correlation coefficient (ICC)) which is checked for test– retest reliability ranged from 0.535 to 0.827 for Urdu translated adolescent self-report Version of CP QOLwas and found strongly positively correlated with GMFCS for wellbeing and participation (r = 0.497), moderately correlated with communication and physical health (r =0.373), school wellbeing (r=0.395) and social wellbeing (r =0.384), but was not correlated with feelings about functioning (r = 0.162).

Conclusion: The CPQoL-Teen (self-report) questionnaire is successfully translated to Urdu and displayed strong psychometric properties confirming its relevance to assess indicators of Health related Quality of Life (HRQoL) among adolescents with CP in Punjab (Pakistan).

Keywords: Cerebral palsy, CP QOL-Teen, HRQoL, Psychometric properties, Urdu translation

Download :